By Sarah Johnson
As a parent, one of my greatest joys is watching my children grow and thrive. Seeing them take their first steps, say their first words, and form their unique personalities fills me with immense pride and happiness. However, parenting my disabled children in our ableist society has also presented unique challenges.
My 8-year-old son James has Down syndrome. While our family and friends have been loving and supportive, I’ve noticed that strangers often treat James differently than his siblings. Some people stare, make ignorant comments, or avoid interacting with him altogether. Once at the grocery store, another child asked their parent why my son “talked funny” right in front of us. As innocent as the child’s question may have been, it was incredibly hurtful.
My daughter Amy is on the autism spectrum. She has difficulty with communication, social skills, and sensory issues. Simple tasks like getting a haircut or going to a birthday party can be traumatic for her. Again, I’ve seen how unfamiliar people react to her meltdowns with annoyance or judgement instead of empathy.
Every day, my disabled children must navigate a world not designed for them. While schools are getting better about inclusion and accessibility, there is still a long way to go. James was bullied mercilessly on the playground until we switched schools. Finding caregivers qualified to work with Amy’s special needs is a constant struggle.
My disabled children are so much more than their disabilities. James loves reading, building with Legos, and telling jokes. Amy is a gifted artist who notices details that others miss. With the proper supports, she and James can grow into happy, thriving adults. All children deserve that chance.
As a society, we must do better supporting disabled individuals and being inclusive from a young age. It is heart breaking as a parent to see your child treated as “less than” because of factors beyond their control. My wish is for a society that values all its members for their unique contributions. With more education, empathy and acceptance, I believe we can become that society. My children deserve nothing less.
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