When my son Adam was diagnosed with autism at age 5, I had no idea how to get him the help he needed. The doctors handed me some pamphlets and sent me on my way to figure out the complex special education system in the UK. I felt scared and alone, but I knew I had to advocate for my child.
After months of confusion and dead ends, I’ve finally gotten my son’s needs recognized with an Education, Health, and Care Plan (EHCP). It wasn’t easy navigating the bureaucracy as a first-time parent. I hope sharing my experiences will help demystify the SEND process for other parents facing this daunting system.
Spotting the First Signs
Looking back, the signs were there early on. Adam had delayed speech, restrictive interests, and poor eye contact. But it wasn’t until he started receiving that his challenges became more apparent. He struggled to focus, make friends, and have disruptive meltdowns. His teacher raised concerns, and I decided to get him evaluated.
When the NHS pediatrician confirmed Adam’s autism diagnosis, I was relieved to have an answer but scared of the unknown. How would I find him help? The pediatrician directed me to contact my local authority to request an assessment. Easier said than done.
Starting the Process
I sent a letter to the council’s Special Educational Needs (SEN) department to begin the process. I described Adam’s symptoms and school difficulties and requested a statutory assessment. Then began the long wait. Six anxiety-filled weeks later, they responded that yes, they would assess Adam for special education needs. Finally, some momentum. A coordinator was assigned, and we had our first meeting. She explained the 20-week process, including getting reports from teachers, therapists, and an educational psychologist.
It seemed daunting, but I was determined to get Adam the specialist help he deserved. I wish the NHS had connected us straight away to the local SEN team. That would have smoothed the transition.
Gathering the Evidence
The next few months involved a flurry of observations, assessments, and paperwork as the SEN team built their case for Adam’s needs. I had to chase people down sometimes for updates, but I tried to be politely persistent.
Adam’s report from the speech therapist showed his difficulty communicating. The educational psychologist’s report outlined his learning challenges and sensory issues. The school evidence detailed his struggles socially and academically.
I added my own report too, describing Adam’s situation from my perspective as his mom. My diary of meltdowns and his problems sleeping helped show the full picture. It was tiresome at times, but I knew it would all help secure Adam’s EHC plan.
Reviewing the Draft EHC Plan
Nearing the 20-week mark, I finally received Adam’s draft EHC plan. Reading through it was emotional, seeing all of Adam’s needs laid out officially. But I also felt proud that we made it this far.
The plan outlined detailed goals for Adam and provisions like speech therapy, small group learning, and visual supports. I requested a few additions, like practical social skills sessions, and checked that his mainstream school placement was the best.
Two weeks later, I received the final EHC plan. Our next step was meeting with the school about how they would deliver Adam’s provision. After all the paperwork, it was rewarding to see real support put into place.
Navigating the School Years
Adam is now seven, and while school is still challenging, the EHC plan provides vital support. We have an annual review meeting to update the plan as Adam’s needs change.
I make sure I attend his IEP (Individual Education Plan) meetings at school to have input into his goals. We are still working on finding the right balance of push and support. Now that Adam is older, I try to involve him more in decisions about his education.
Of course, we still have blips and battles at times if I feel Adam needs more provision. But overall, having the EHC plan gives me confidence that Adam’s needs are recognized and supported. My advice to other parents is to educate yourself on the SEND system, find your voice, and never stop advocating for your child.
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